We’re still here

Yes this website is still around. No I haven’t forgotten about it.

I just have had one busy year and haven’t had the mojo to update it as needed.

However most (if not all) of the information is still accurate in terms of meetings (contact information and all of that). Please know that I’m unsure if the leaders respond to the contact forms so I maybe rearranging some things to put direct contact information for each leader, but need permission from each group .

Rumor has it tick season will be bad this year. Remember if you find them attached to you, remove carefully with fine pointed tweezers and never ever drop anything on the tick to “make it back out.” All that does is frustrate the tick and it will empty out the stomach contents (which is where bacteria & viruses live in the tick) inside of you.

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June – Wake County Groups

RALEIGH GROUP MEETING:  The next meeting of the support group will be held on Sunday June 5, 2016 from 2:00 pm to 5:00 pm at the Earthfare community meeting room at 10341 Moncreiffe Road (Brier Creek area) in Raleigh (phone number is 919-433-1390). You may need to ask a sales associate for help getting to the room in the back of grocery store. This special location is needed since our speaker will need a wi-fi free place for Andrew McAfee’s talk on Lyme-induced electrosensitivity. Please note that this location is different from the now normal location for the support group meeting.  We will have a general discussion concerning Lyme Disease and other tick borne illnesses after Andrew’s presentation All members who are interested in this topic are urged to attend and we hope to see you there!  Also, please check out our newly revamped website at www.nclyme.net and let us know about any needed improvements!  — John D.

APEX GROUP MEETING:  The next meeting will be on Sunday, June 12, 2016 from 2:30 to 4:30pm at the Eva Perry Library ( 2100 Shepherds Vineyard Dr, Apex, NC 27502) in the back conference room.  It will be open discussion, but we may also discuss legislation in NC.

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NC Support Groups

Please be sure to come straight to our website to check out the support group tab!!!!  We have a support group tab as well as something under the support group for each support group as well as the dates.  We try to keep this as current as possible.

If you have questions for any of the groups listed below, please contact their leader.  Go on further down for more information other than simple list of dates.  These dates & times & locations are NOT confirmed with the leader and last minute changes could happen.  Please contact the leader of each group to confirm dates, location & time.


  1.  Raleigh NC Group
  2. Charlotte NC group
  3. Asheville NC group
  4. Apex Group
  5.  Wilmington NC group
  6. Winston Salem NC Group
  7. Salisbury NC Group 

Apex – Generally – 2:30 to 4:15PM at the Eva Perry Library in Apex, NC (2100 Shepherd’s Vineyard Dr.).  The meeting room is in the back right corner of the library, next to the computer station.

Asheville – Asheville Support Group starting. We are happy to announce that the first meeting of the Asheville Lyme Disease Support Group will be held on Saturday December 12 starting at 2 pm at the South Buncombe/Skyland Library at 260 Overlook Road in Asheville.  Janet Dooley and Deb Kania are the organizers of the Support Group and John Dorney, President of the NC Lyme Disease Foundation will attend to help get the group started. Everyone who is interested in attending is urged to do so.  Janet can be reached at janlyme@charter.net.

Charlotte -Generally 2nd Saturday from 1pm to 4pm – contact John M for more information charlottelyme@gmail.com

Raleigh Generally meets the 1st Sunday of the month from 2 to 5.   Leader John D can be reached at the NC Lyme Disease Foundation website – see website for NEW location & time. http://www.nclyme.net/

Salisbury – The Celebration of Hope Piedmont NC Lyme Disease Support Group meets in Salisbury North Carolina.   They meet on the 4th Sunday of each month beginning at 3pm.  Meetings presently are held in the offices of Lyerly Counseling on S. Main Street in Salisbury.  They also have a FB Page.    https://www.facebook.com/celebrationofhopepiedmontnc

Wilmington – This group began in September.  They generally meet the 3rd Sunday of the month at an undisclosed location.  In order to find out the location, you must be on the email list which you can join by selecting Wilmington under the support group tab.

Winston Salem: Location: Derrick Davis Cancer Center, Conference Center, 1010 Bethesda Court, Winston Salem, NC 27103 Note: The center is behind Forsyth Hospital, parking is FREE, and the walk is short. The group will meet in 2016 on the first Monday of the month from 5 to 7:30.  Email (teresasimmons@msn.com or Fontrier@aol.com) or call (336-784-4338)or (951-219=8804) for more information.

In addition, if you are interested in assisting with future meetings or taking a leadership role with the organization, please email (Teresa Simmons teresasimmons@msn.com) or call (336-784-4338). They welcome all levels of interest!

Hendersonville –  Hendersonville’s support group may have been cancelled as we haven’t heard anything from that group leader in quite some time and the website’s domain is no longer active.  We want to keep it available on our tabs just in case it resumes again.

If you want to reach out to any of the leaders feel free to fill out the form below.  The information will be passed on to the appropriate leader.  Be sure to include in the comment section which city support group you’re wanting to reach.

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Dogs & Tick Borne Disease Map


Put in your zipcode into this map and you can see the diseases of Lyme, Anaplasma, Ehrlichia & Heartworm – which are all vector borne diseases.

In North Carolina, the presence of all 4 exist.   It appears to be a map over 5 year period, but can’t tell for sure.  I will edit this post if I get information.

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Circle of Friends Support Meeting in Apex NC

The next meeting of the Triangle Lyme Disease Support Group will be the second Sunday, October 11th 2:30 to 4:30PM at the Eva Perry Library in Apex, NC (2100 Shepherd’s Vineyard Dr.). The meeting room is in the back right corner of the library, next to the computer station. Our meeting will mainly be open discussion and will give everyone the opportunity to ask questions as well as share their experience, strength and compassion with one another. Bring a pen and if possible wear teal, purple or green. https://www.facebook.com/events/1627850534132212/

Unfortunately, I have some sad news to share with you.  In the last month, we have lost 3 members of the NC Lyme Community.  CC, Scott and Chelsea. 

After I got the news of our losses, I began thinking of ways to remember & celebrate the  lives of our friends. It’s impossible to have a date & time that works for everyone so I’m hoping that many can join us on October 11th at 4:30pm at the Eva Perry Library. After our meeting ends at 4:30, we will all meet out front (hopefully weather will cooperate) to create a circle of friends to have a small remembrance time. We hope that even if you aren’t able to attend the meeting from 2:30 to 4:30 that you will join us for a short time at the conclusion of the meeting. If we exceed the meeting room capacity, we may have to split the meeting and have some members meet outside – we have never met the capacity of the room, but since this meeting is the first one since we lost a member of the group – I’m not quite sure what to expect.

Thank you so much and I look forward to seeing as many of you as possible on October 11th. If you have any questions about the meeting, don’t hesitate to reach out and ask.

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Charlotte Oct Mtg Cancelled

Due to a family emergency, the Charlotte meeting has been cancelled for October.  They will resume meetings in November.

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First Wilmington NC Support Group Meeting

The first support group in Wilmington NC is likely to happen on September 13th in the afternoon near the Monkey Junction area.  For safety reasons, we will  not share the address of the location on our website.   If you want to attend, you must fill this out for the hosts to contact you.

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