Lyme Letter Campaign Reminder

We ask for your participation in the 2013 Lyme Letter Campaign to NC Health Care Providers.  You are an NC resident who suffers from Lyme or Lyme-like Illness (or are the friend, family member or caregiver of someone with Lyme). You were initially denied diagnosis and treatment only to subsequently seek the care of a doctor elsewhere.

How to participate:

  1. Utilize the bullet points listed below to assist you in your letter writing
  2. Address your letters to NC Health Care Providers
  3. Sign your letter using your initials and location (e.g., P.S., Raleigh, NC)
  4. Email completed letter to “lymeletters@gmail.com

Your emailed letters will be compiled by an NC Lyme Disease Advocate and delivered to NC Health Care Providers in bulk on the same day. Your original emails will be held in strict confidentiality.  Please use only your initials and location on your letter, not your full name. The letters will be printed and shared, excluding all email addresses and personal information. By emailing your letter, you are agreeing to these terms with the knowledge that your letter may be indirectly used or shared for further awareness campaigns including efforts to change legislation.

Here are questions that can help you formulate your letter.

  1. What is your name? (use your first name or initials only)
  2. Where do you live?
  3. Where do you think you contracted Lyme Disease?
  4. How long did it take for you to be diagnosed?
  5. Do you remember being bitten by a tick, if so where?
  6. What were your initial symptoms?
  7. How were you initially treated, if at all?
  8. What were the consequences?  (personal, occupational, financial)
  9. Have you begun treatment yet?
  10. If yes, have you improved with treatment?
  11. Did you need to go out of state for treatment?
  12. Which closing would you prefer for your letter? See two options below

The Basic Closure OR the Advanced Closure

1.  The Basic Closure :  Doctors, we ask that you objectively educate patients on the   endemic counties for Lyme Disease and the lab testing limitations. If you opt not to treat based on clinical symptoms, please refer patients to other resources such as www.ilads.org for other options.

2.  The Advanced Closure:  Are you aware that Lyme is a ‘reportable disease’ in North    Carolina? It is important for all physicians to follow through with reports for a true epidemiological representation of what patients are experiencing in this state. Doctors, we ask that you objectively educate patients on the   endemic counties for Lyme Disease and the lab testing limitations. If you opt not to treat based on clinical symptoms, please refer patients to other resources such as www.ilads.org for other options.

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