I’d like to wake up one day where I don’t have to fight Lyme Disease, Babesia, Bartonella, Mycoplasma or any other disease that a tick decided to give me when he bit me that one time and stayed for breakfast, lunch & dinner. I use the little spurts of energy I have for one thing – advocacy. I use the term “energy” loosely.
Next Thursday begins Lyme Disease Awareness Month. It’s unofficial in many states, but here in NC – it has been recognized by a proclamation signed by our Governor. I feel guilty that I haven’t personally planned some grand event in the Raleigh area. Right now – there isn’t one being planned – at least not on any grand scale that I’m aware of. I feel awful about that. Truly – pit of my stomach – awful. I think about the planning that goes into a big event. I think about the day of the big events. I think of the little support in the planning & setting up -and I know it’s all just too much for me, right now at this point in my treatment.
I think about how hyped up I get in my head about the “big event” – and then I think about the “let down” I feel – when the same people show up. It’s almost like preaching to the choir. I try to “lift my spirits”: by saying – if help only one – but I don’t want to help just one. I want to show all of North Carolina – that one tick can change your life. I would know. It changed mine.
I hear constantly about what people can’t do – I want to start hearing what we CAN do.
What can YOU do for Lyme Disease Awareness Month? Here are 7 things that I can do. (I will likely do 5 of the 7 of them). Please comment with what you CAN do for Lyme Disease Awareness Month.
- I can put together a packet of information for my Primary Care doctor and have my husband drop it off when he goes for his next visit.
- I can set up an informational booth on my own front lawn during a community yard sale. I’ve done this in the past and it worked well. I even had some things for purchase which brought people over. I educated a lot of people that day on how to properly remove ticks. In all honesty, I probably won’t do it this year because our community yard sale is tomorrow and I absolutely have no stamina to stay out there from 6 to 11 by myself, but this would be something FREE I could do because I have all of the materials – supplies – and I even have a table!
- I can stand side by side with another Lyme advocate that has planned, prepared & set up a Lyme Booth in the Raleigh area for a couple of hours where I didn’t need to bring anything except my body.
- I can tie a lime green ribbon on my mail box to show my solidarity for Lyme Disease Awareness Month. I will go to Michaels to pick up one that is already pre-made or – pick out the ribbon I like the most and have them make it for me. It’s generally under $8.99 – and it looks nice and I don’t have to do it myself. – This time it was $4.19!
- I can order a few Lawn signs and ask if I can put them out at different around the community. I would put it in my yard at home, but it’s against our HOA rules. However that doesn’t stop me from asking businesses if I could put my signs up near them – especially businesses that could be related – such as Vet’s offices. And if they aren’t weathered too badly – I could clean them up at the end of the month and reuse them in 2015!
- I can wear my Lyme Disease Shirts in public ( I can – and did – fundraiser with T-shirts!) This gets people asking about Lyme. While I was getting a bow – I had THREE people ask me about Lyme Disease. Considering the store was empty – that’s amazing! I also had the man at the post office ask me. Awareness can happen anywhere at any time – and if you have a shirt on – you may be provided with the opportunity to raise awareness about Lyme Disease.
- I can wear my We Fight Lyme Together bracelets in public (you can get them: https://nclymeadvocacy.wordpress.com/2014/04/18/bracelet-fundraiser/)